我的声音，我的社区——让整个社区内的唐氏综合征患者勇敢发声、受到关注，并影响政府政策和行动

2018-04-02 00:00:38

↑ 点击上方“中国围产医学网”关注我们

2017年3月21日是世界唐氏综合征日设立12周年的日子。国际唐氏综合征慈善机构2017年的主题是：

我的声音，我的社区——让整个社区内的唐氏综合征患者勇敢发声、受到关注，并影响政府政策和行动。

CALL TO ACTION/倡议

My Voice My Community – Enabling people with Down syndrome to speak up, be heard and influence government policy and action, to be fully included in the community

我的声音，我的社区——让整个社区内的唐氏综合征患者勇敢发声、受到关注，并影响政府政策和行动

In 2017, we are working with our global network to/2017年，我们正在和将利用网络做以下几项内容：

Explain why it is important for people with Down syndrome and their advocates to speak up and influence local, national, regional and international policy makers

阐述对于唐氏综合征患者和倡导者而言，勇敢发出声音并影响地方，国家，区域和国际政策决定者的重要性。

Explain what the key policies are which affect the lives of people with Down syndrome and how they can ensure full society inclusion if implemented

阐述真正影响唐氏综合症患者生活的关键政策，以及如果进行实施将如何确保这些关键政策全面落实到社会。

Explain how advocates can get involved – from media campaigns to direct political advocacy

阐述倡导者如何进行参与 - 从媒体活动到直接政治宣传。

Explain how to empower people with Down syndrome (and those supporting them) to advocate for themselves and provide accessible tools to facilitate this

阐述如何赋予唐氏综合征患者（和支持者）能力与权力，为自己发出声音并为他们捍卫自己权力提供便利的工具

We encourage people with Down syndrome to say "My Voice, My Community" and we ask everyone to respond to our call by sharing and showing the world how people with Down syndrome participate in the community alongside everyone else.

我们鼓励与提倡唐氏综合征患者呐喊出 “我的声音，我的社区”，并且我们提倡大家通过分享与展示自己身边的唐氏综合征患者来响应我们的号召。